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CART-WHEEL is helping cancer researchers understand the characteristics and behaviour of rare tumors.
The WhiMSICAL study is now capturing data relating to COVID-19 and welcomes WM patients to register or update their data.
Our questionnaire collects information from people all over the world, so we can build a rare tumor database to address some of the barriers facing effective research into rare types of tumors, rare subtypes of common cancers and inherited rare tumor predisposition.
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Research in rare cancers is challenging due to difficulty in finding cases. Individually rare cancers affect small numbers of patients but when put together they make up over 20% of all cancers diagnosed each year. Yet they receive only about 5% of research funding and attention.
Patients the key to success of WhiMSICAL research
Providing the technology to link together the anonymous patient information from all of these different databases in a way that maintains the privacy and security.
RCA has been established to provide support, education and government advocacy for patients with rare and less common cancers and their carers.